Something I'd rather not hear right now? That my son has not changed, that he is the same baby he was before diagnosis. NO FUCKING KIDDING. Thank you for pointing that out. So he still can't walk, talk, wave, use a spoon? Great.
I don't want to hear about your cousin's friend who has a child with Down Syndrome who works for the MTA. I don't want to know that you knew someone who had a kid who had something *really bad* and they have their own apartment now.
The problem with opening up & sharing; asking for words and emotions and reactions is that you often get hit in the face with a frozen pile of shit that stings and smells and makes you want to vomit all at the same time.
The good thing about it is that you sometimes hear things like this: Lincoln doesn't know he has a diagnosis. Lincoln will always believe he is Lincoln. Yes. YES! YES!! This made me believe that someday the grief will subside.